Serotonin Syndrome

 I think I just figured out why I have been feeling crazy and ended up in the ER last week!

Happiness

Is what really matters...

Central Ohio Walk for PKD 2010

Was a huge success! Inspires me to start and keep writing in this journal of my travels through the PKD world!

Tired of being from Guinea

Tired of PKD! Tired of kidneys! Tired of the words dialysis, transplant, creatinine, Blood Pressure, medication, water, anxiety, depression, divorce, separation, late and mental.

All in all, I'm sick and tired of being sick and tired! But I must be careful what I wish for.

PKD = Paralyzing Kamakaze Dance

2/2/210

A quick review of this blog shows me that not only did my documentation slow way down... I only wrote in it 1 time in 2009. Then everything with Teresa and the need for a transplant started and it's been rough riding ever since. It's now 2/2/10... first entry since 7/16/09... I have been writing in my personal journal... versus this public one as the year has turned into a year of personal internal problems better left undiscussed. If you were to read my personal journal, you would see that I have reverted to documenting the uncanny things that are happening in my life in which I continue to make a decision that is the same decision as the last time, which fails every time and you find yourself back at where you started.
So then 2010 I begin making different decisions. Not necessarily the correct ones... just different ones. So I chose different being dating 2 instead of 1 person which led to a disastrous January (every day) followed by the 1 supposedly moving in with me after my roomate moved out and I'm kinda lost in the middle.
Lost in the middle of nowhere!

Looking for a kidney

I would have never imagined coming to a point in my life where I would be sending this request. However, this isn't about me. A close family friend of mine grew up with diabetes which ultimately led to her needing and receiving a double-organ kidney-pancreas transplant 21 years ago. She is now 48 and finding out that her transplanted kidney is failing. She is on the organ list, but time is quickly running out. Her entire family has stepped up to the plate but have come back incompatible for kidney donation.? Where does this leave her now? Scared, but hopeful and loved. She has asked me to send this message to everyone I could possibly email and request that you forward this email to your entire address book as well in hopes that if enough people read or hear about this request, somewhere, someone may feel lead to step up and donate the gift of Life.
Those interested should contact The Ohio State University Medical Center Pre-Transplant Department at 293 -6724.
"They can ask for Robin or Bonnie.... They'll send people infoand/or answer questions.?? Tell people to let Bonnie /Robin know theyare calling regarding me? (if it is for me and not someone else they maybe considering) Teresa Jacott :)? Thanks." (Any potential donor must have an O pos or neg blood type, not A, B or AB. O pos and neg being eligible and the most prevalent blood type in the U.S.)
Please add this request to your prayer list and help me get this email to as many people as possible. This is not a typical request... I am aware of this. However, Teresa is not a typical person. She is a friend, daughter, mother, and sister to many who count on her... and this matters.Thanks for reading. Feel free to ask me any questions as well. My father had a kidney transplant when I was 4, so this topic is far from foreign to me. I might not know the answer but I can find it.
Jared Cunningham

Sunday night

Late. Time for bed. Starting to feel much better though... thank God!
These medication changes have NOT been easy!
May I get some rest...

rough week

Been a couple of rough weeks with the medicine changes. Feling fatigued and nauseous most of the time. Plus,It's WaLK FOR PKD season, so things are getting hectic.
Have a check in to verify my drug levels and report BP's to Cleveland Cinic tonight,so we will get a good check then.
Until then, just relax.

124/85

BP looking much better than last night thank God. Yesterday I was feeling lousy and BP was running 149/106. Rather high. So, I just relaxed and drank water and things came down. Looking good and feeling better tonight.
Looking forward to Friday... I go back to Cleveland Clinic and stop the beta blocker. Start the clinical trial drugs. Anxious to get this show started!

Non work related

Just confirmed a dinner date for tomorrow night. Nice....