Saturday, July 16, 2011

Good news??? Uncomfort

So we got the information on the organ recipients from my brother Jason. I expected that hearing about the good fortune of these individuals would lessen the pain my mom and I are still feeling from the loss of him, but I remain uncomforted. Uncomfortable is a good word for the day. Woke up uncomfortable in my own skin due to the doc weaning me off a medication. So, everything is uncomfortable. I need to be comfortable knowing that Jay's life continues through the life of others. Specifically: a 57 year old woman who received Jay's liver. A 71 year old woman who received his left kidney. A 62 year old gentleman who received his right kidney. And a 27 year old man who received his lungs. God bless each of these people. But God bless us as well as we come to accept losing the one and only brother I have / had. Not even two months later, how can we? A new life has begun for the Cunningham's.... we are getting smaller and smaller. Humbled by the loss of many loved ones. Not one of these loved ones was unaffected by organ transplantation themselves. It seems to be the one battle we all have to tackle while on this planet. I won't be ready to tackle my own organ transplant battle until I'm comfortable with the ones in my present and past time.

Mom says that dinner's ready. I'm comfortable with that!

Thursday, February 17, 2011

The Definition of Cunningham

STRENGTH

Strength: power to resist force. Strength may come in all different forms. It may seem small and insignificant, but no strength is such. Having strength does not necessarily mean how much weight you can lift. Strength to accept change or keep from changing, strength to keep going when everyone seems to give up. It is an amazing characteristic that you own.

 

Sunday, February 13, 2011

PKD Sucks

Been seeing this pfhrase pop up all over the internet and PKD family. Obviously becoming more than annoyed at the daily side effects of having PKD. You just get worn out... so it's not a surprise to start seeing this phrase.

Not just Cure PKD, End PKD, PKD Sucks, Fuck PKD, PKD Stops with me! THey all say the same in the end.... PKD is the enemy and it's time to declare war! We can't give up the fight until  we find a treatment or the cure. PKD needs to quit it's tyranny on everyone it affects.

I'm choosing my weapons..... what are you going to do?

Saturday, December 18, 2010

Happiness

Is what really matters...

Tuesday, September 28, 2010

Central Ohio Walk for PKD 2010


Was a huge success! Inspires me to start and keep writing in this journal of my travels through the PKD world!

Thursday, May 6, 2010

Tired of being from Guinea

Tired of PKD! Tired of kidneys! Tired of the words dialysis, transplant, creatinine, Blood Pressure, medication, water, anxiety, depression, divorce, separation, late and mental.

All in all, I'm sick and tired of being sick and tired! But I must be careful what I wish for.

PKD = Paralyzing Kamakaze Dance