PKD Guinea Pig
My personal experience as a person Living with PKD and a participant in the HALT-PKD clinical trials.
Wednesday, November 30, 2011
Saturday, October 29, 2011
Saturday, August 20, 2011
Wednesday, July 20, 2011
Account
The history of my stupidity would fill many volumes.
Some would be devoted to acting against consciousness,
Like the flight of a moth which, had it known,
Would have tended nevertheless toward the candle's flame.
Others would deal with ways to silence anxiety,
The little whisper which, though a warning, is ignored.
I would deal separately with satisfaction and pride,
The time when I was among their adherents
Who strut victoriously, unsuspecting.
But all of them would have one subject, desire,
If only my own -- but no, not at all: alas,
I was driven because I wanted to be like others.
I was afraid of what was wild and indecent in me.
The history of my stupidity will not be written.
For one thing, it's late. And the truth is laborious.
Some would be devoted to acting against consciousness,
Like the flight of a moth which, had it known,
Would have tended nevertheless toward the candle's flame.
Others would deal with ways to silence anxiety,
The little whisper which, though a warning, is ignored.
I would deal separately with satisfaction and pride,
The time when I was among their adherents
Who strut victoriously, unsuspecting.
But all of them would have one subject, desire,
If only my own -- but no, not at all: alas,
I was driven because I wanted to be like others.
I was afraid of what was wild and indecent in me.
The history of my stupidity will not be written.
For one thing, it's late. And the truth is laborious.
Always challenge Certainty
1) Always challenge certainty, especially your own
2) Excellence is an unrelenting struggle but it is also the surest route to enduring satisfaction
3) Emotions are contagious so it pays to know what you’re feeling
4) When in doubt ask yourself, “how would I behave here at my best?”
5) If you do what you love, the money may or may not follow, but you’ll love what you do
6) You need less that you think you do
7) Accept yourself exactly as you are but never stop trying to learn and grow
8) Meaning isn’t something you discover, it’s something you create, one step at a time
9) You can’t change what you don’t notice and not noticing won’t make it go away
When in doubt, take responsibility
Monday, June 6, 2011
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